DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Across America 2021
Rare Disease Legislative Advocates (RDLA) staff organizes virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
No prior advocacy experience is necessary.
Registration for this event and all RDLA events are free for rare disease advocates.
When:
February 22, 2021 – March 5, 2021
Where:
Virtual meetings with your Members of Congress and Virtual Advocacy Events


Related Content
-
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Genetic Therapies in Sickle Cell DiseaseTo commemorate Sickle Cell Awareness Mon...
-
education & researchSelf‐Management Recommendations for Sickle Cell Disease: A Content Analysis of WebsitesThis paper reports on the findings of a ...
-
news & eventsSoutheastern sickle cell conferenceSickle Cell Foundation of Georgia is org...
-
news & events10th Annual Walk with the Stars – Sickle Cell Disease Association of America, Inc.When: September 16, 2023 Where: Rash Fi...
-
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Bone Marrow Transplants, Other Therapies, and Sickle C...To commemorate Sickle Cell Awareness Mon...
-
news & eventsFSCDR’S Inaugural Behavioral Science Symposium Sickle Cell Disease: Matters of the HeartFSCDR’s Inaugural Behavioral Science S...
-
education & researchAssessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to TransitionIntroduction: Transition of medical car...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by

This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.